I have a mom who delivered a baby with Pierre Robin syndrome. I think it would be helpful for her to have another mom who has had or is having experience breastfeeding a baby with these challenges. Stickler syndrome has been ruled out. (I already checked archives for general information.) Please e-mail me privately at [log in to unmask] if you can help link up this mom with this type of experiential knowledge. Thank you. Ellie Lentner.
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