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Fri, 25 Feb 2000 13:26:52 -0600 |
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Pat -- there is tons of info on the web, and Ross Labs apparently makes a
special formula for children with this. It seems to be genetic??
Kathy Dettwyler
I found this site by doing an Infoseek search on Methylmalonic acidemia,
and there are many others.
Organic Acidemia Association
13210 35th Avenue North
Plymouth, MN 55441 (new address Feb 1999)
612-559-1797 - voice
612-694-0017 - fax
E-mail: [log in to unmask]
Web site: http://www.oaanews.org
Contact: Kathy Stagni, Executive Director, e-mail: [log in to unmask]
A Guide for the Family of the Child with Methylmalonic Acidemia, a book for
families. The Ross Metabolic Formula System,
Columbus, OH. 1 800 986-8755.
Describes MMA, the amino acids involved, as well as treatment. The
second part of the book is dedicated to dietary management issues.
Recommended by
a metabolic nutritionist as very helpful to teach families about diet.
Also See:
Alliance of Genetic Support Groups Current Directory
Family Village Disability-Related Resources
National organizations information on genetic conditions or birth
defects
Online information, National Health Information Center (NHIC)
Urea Cycle Conditions
Metabolic Conditions
----------------------------------------------------------------------------
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Katherine A. Dettwyler, Ph.D. email:
[log in to unmask]
Anthropology Department phone: (409) 845-5256
Texas A&M University fax: (409) 845-4070
College Station, TX 77843-4352
http://www.prairienet.org/laleche/dettwyler.html
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