~~~~~~~~~~~~~~~~~~~ On Mon, 15 May 2006 12:08:39 -0500 Daniela Torres-Marco wrote: I have permission from the mother to post this problem. This baby has an = NG tube and parents are getting desperate. ... Term baby girl, adequate for gestational age, with Down Syndrome and a = congenital heart defect. Breastfed without any problems for about 1 = month (growing fine). .... intake and growth declined, so tube feedings were initiated = .... This went on until her surgery. Repaired ~3 weeks ago, her = heart is no longer an issue, but she won't eat. She will only take the breast - hates bottles, SNS, cups, haberman = nipples, syringes, etc. However, she is taking only 200ml per day from = the breast (mom doing pre and post wts), everything else in being fed = through the NG tube. She loves to be at the breast, great latch and = suck, and will transfer up to 90ml when she gets serious. The problem is = that she latches and sucks for a little while and then starts to play, = babble, blow raspberries, smile, etc. She won't go back to "serious" = feeding (mom has tried 3+hr periods at the breast without success). She = is a very content little girt, rarely cries from hunger, but does give = other cues, and she likes to cluster-eat in the afternoons (every hour = or so) will sleep through the night if parents let her.=20 We have tried: eliminating almost all distractions (her mom is her = favorite distraction, so can't get rid of her :o)) feeding every 3 = hours, feeding every 4 hours, feeding completely on demand (had to stop = this because she would dehydrate), now we are feeding on demand without = letting her go more than 4 hours and making sure she gets fluid needs = met (with NGT), but only fluid needs to see if she gets hungry and eats. = So far, she hasn't. .... Hi Daniela Have you tried feeding this little girl *pre-demand*, say at 2 to 2.5 hour intervals? This might help her turn the corner. A little bit, often, is going to add up to more than a little bit at longer intervals. Just a thought. Virginia in Brisbane ~~~~~~~~~~~~~~~~~~ *********************************************** To temporarily stop your subscription: set lactnet nomail To start it again: set lactnet mail (or digest) To unsubscribe: unsubscribe lactnet All commands go to [log in to unmask] The LACTNET mailing list is powered by L-Soft's renowned LISTSERV(R) list management software together with L-Soft's LSMTP(R) mailer for lightning fast mail delivery. For more information, go to: http://www.lsoft.com/LISTSERV-powered.html