I received a call from a family in Plattsburgh, NY. I have permission to post. Baby is 8 days old. Multiple issues including possible mosaic Trisomy 18, possible CHARGE syndrome, cleft soft palate. Now taking EBM through dropper. Poor weight gain. The family is receiving medical care (genetic counseling, cardiac screening, ophthalmology, etc.) in Burlington, VT. Mom is very committed to giving baby breastmilk for optimal neuro development, etc. She did nurse her older child. She is pumping more than baby is taking at this point. The family is looking for any hands-on BF support they can get. I am nearly 5 hours away from them. Doesn't sound as though they have had direct contact with an LC. Seems like the medical folks they are dealing with are pretty supportive of the EBM at this time, though. The family does not have internet/email access. Please email me privately if you know of anyone closer who would be able to offer hands-on BF support/assistance to this family. Thank you. Jayne R. Charlamb, MD, IBCLC, LLLL [log in to unmask] *********************************************** To temporarily stop your subscription: set lactnet nomail To start it again: set lactnet mail (or digest) To unsubscribe: unsubscribe lactnet All commands go to [log in to unmask] The LACTNET mailing list is powered by L-Soft's renowned LISTSERV(R) list management software together with L-Soft's LSMTP(R) mailer for lightning fast mail delivery. For more information, go to: http://www.lsoft.com/LISTSERV-powered.html