Dear colleagues: Where do you refer breastfeeding mothers of nurslings with congenital disorders when they need more information and support as they cope with their child's disorder? I'm trying to compile a list of resources (particularly national/international organizations) that provide support and information (OUTSIDE of the United States or in languages OTHER THAN English) to individuals and families affected by congenital disorders (birth defects). The information will be included in a publication for lactation consultants regarding breastfeeding and congenital disorders, so it must be accurate/up-to-date. I need the exact name of the organization, mailing address, phone, facsimile (fax), web site address (url), and a brief description of the services offered by the organization. If you know of resources in your non-US nation and/or non-English language, please email me privately as soon as possible. If you would like to see my US/English list of major resources, take a look at my article "Congenital Disorders: Implications for Breastfeeding" (Good Mojab, C., LEAVEN, Vol. 35 No. 6, December 1999-January 2000, pp. 123-28), available on-line from the publications page of my web site, Ammawell at http://ammawell.homepage.com and on LLLI's website at http://www.lalecheleague.org. [I do know about the Birth Defects Foundation in the UK (http://www.birthdefects.co.uk/) and the information regarding congenital disorders that is available on-line in Spanish (and English) through NOAH (New York On-line Access to Health) (http://www.noah.cuny.edu/).] Thank you! Cynthia Good Mojab, MS Clinical Psychology (Breastfeeding mother, advocate, independent researcher and author; LLL Leader and researcher in the LLLI Publications Department; and former psychotherapist currently busy nurturing her own little one.) Ammawell Email: [log in to unmask] Web site: http://ammawell.homepage.com *********************************************** The LACTNET mailing list is powered by L-Soft's renowned LISTSERV(R) list management software together with L-Soft's LSMTP(TM) mailer for lightning fast mail delivery. For more information, go to: http://www.lsoft.com/LISTSERV-powered.html