I saw a nice mom and baby yesterday for a consult, she is trying to breastfeed a baby with a trisomy 9, not sure of all this entails with this particular infant. Diagnosis was profound deafness but he is making all sorts of sounds. He is almost two months old, has never latched properly. He is a bit hypertonic, clenches his mouth. She is using the Avent bottle but has opened the hole up because it took him an hour to feed and he was not eating well. His intake is only about 17 ounces a day, combined breast milk and formula, mom's milk supply is low, not pumping enough. We talked about this and she will try and build supply. I gave her some homework, to try and get his mouth open and lips flanged with the Avent, lots of skin to skin, bathing with baby, checking to see if she can find a cranial sacral therapist. After watching him briefly at the breast, decided that latch at that moment wasn't going anywhere, child was hungry and frustrated, whipping head back and forth with mouth mostly closed. I could not get him to drop his jaw with my finger on his chin. Tongue is down, suck seems strong enough to me. Infant is strong enough to roll front to back. I will only be in town till Friday pm but back August 1st and will revisit then. Pat Pat Thomas PHN IBCLC Winona County Community Health Winona, MN *********************************************** The LACTNET mailing list is powered by L-Soft's renowned LISTSERV(R) list management software together with L-Soft's LSMTP(TM) mailer for lightning fast mail delivery. For more information, go to: http://www.lsoft.com/LISTSERV-powered.html