Pat Gima posted, << One line that bothers me is "Janssen Pharmaceutica, the manufacturer of Propulsid recently announced that it would stop marketing the drug in the US in July." Obviously, they will still import it to other countries with the same dire outcomes. I wonder how many other cases of "SIDS" could be traced to medications of some kind. >> Probably lots. Bottom line, SIDS is still a diagnosis of "I dunno why," so anything that causes death we don't understand gets chucked it. As our habits of treating babies change, so does this (invisible) list, right? On the other hand, it didn't say why the baby was getting cisapride to start with, and I don't know whether there might be some reasons that would be riskier than the drug -- that is, where the risks might be worth taking. In my neighborhood there seem to be millions of kids on Zantac syrup for reflux (including one of mine), which is technicallly not researched for children either; but the only child I know of who was prescribed cisapride was a newborn who had had a tracheo-esophageal fistula repaired, and the docs felt he needed very low acid in his system for the first weeks to make sure that that the patch healed appropriately. I am not anything like knowledgeable enough to say whether cisapride was the right drug to effect that, but it doesn't seem beyond the realm of possibility that in some few cases like this one the potential benefits of the drug might balance its potential risks -- the fistula was life-threatening too, after all, and the potential for its rupture ditto. And certainly we have seen cases where insurance liability or politics or etc caused the pulling of drugs in the US that should have remained available to some patients. Let's not forget that we can't get domperidone in the US either... Elisheva Urbas, NYC *********************************************** The LACTNET mailing list is powered by L-Soft's renowned LISTSERV(R) list management software together with L-Soft's LSMTP(TM) mailer for lightning fast mail delivery. For more information, go to: http://www.lsoft.com/LISTSERV-powered.html