This is an autosomal recessive disease.  Feeding problems are a big part
of the difficulties.  I have never heard, however, that babies cannot
breastfeed when they have this problem.  If the baby *needs* some sort
of supplement, why not give it with a nursing supplementer?  Bet the
neonatologist is only assuming breastfeeding is not possible or
desirable because he always assumed it was not and told the mothers they
couldn't.

Jack Newman, MD, FRCPC