Not from a lactation point of view, but certainly from an expert point of
view I would recommend the our kids list for information on sensory
defensive babies and children...this is a subscription list for parents
of special needs kids and they are a pretty impressive bunch when it
comes to resources.  if you would like the address of the list let me know

Pam Novak Cawley                             e-mail:[log in to unmask]
100 West 49th Avenue                         Voice: 323-5484
Langara College                              Fax:  323-5555
Vancouver, B.C.
Canada
V5Y 2Z6

On Wed, 26 Jun 1996, Lisa Marasco, IBCLC wrote:

> Hi all-
> Once again I am writing on Nancy Williams' behalf. She is currently in
> another state awaiting the birth of her sister's baby, ready to help. In the
> meantime, she has been trying to solve a long-time puzzle, and has at last
> uncovered an important piece.
>
> Nancy's sister has had excruciating breastfeeding experiences; each of her
> three babies has caused her unremitting pain inspite of good technique and
> skilled help.  (Nancy has even put one to her own breast and felt the
> clamping and pain, but was unable to change the suck with normal training
> measures) Further, each of the children have been somewhat unusual,
> especially #3, who has just been diagnosed as sensory defensive (SD). This
> last child is a toddler who is just learning to crawl, and who displays
> temper tantrums and behavior that is at times reminiscent of autism.
> According to an OT, SD tends to be familial, and she feels that the
> breastfeeding problems with *all* of the children are related to this.  In
> the meantime, because the mom's pain is similar to Raynaud's phenomena type
> symptoms, Nancy has also been pursuing treatments for that, such as Magnesium
> (anybody know the appropriate dosage?).  Can't leave a stone unturned!
>
> So-- I'm confident that someone out there has experience with sensory
> defensive babies and understands the underlying issues better than we.  Baby
> #4 is due any day now, so any and all help and references would be
> appreciated very much.
>
> TIA,
> Lisa Marasco, IBCLC
> Nancy Williams, IBCLC
>