Is anyone aware of a link between PXE and the inability to establish an 
adequate milk supply?  Recently a colleague of mine worked with a first time 
mom that denies breast changes during pregnancy.  She had colostrum, but 
six days postpartum did not experience any increase in milk production.  Her 
sister is also diagnosed with PXE and delivered a baby 5 weeks ago.  She also 
was unable to establish a full milk supply.  She is still breastfeeding and 
pumping, according to her sister, but with volumes of less than 1/2 oz.  

Thank you for any information

Brook Broadbent RN, IBCLC, RLC

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