Hi Joy
There was an article in the May edition of Australian Family
Physician addressing this subject. The author was Dr Nicholas
Lennnox, Head of the Developmental Disability Unit, Dept of Public
Health and Community Medicine, Uni of Melbourne.
The article was an overview of the syndrome, but did mention that
severe hypotonia is a major problem, and that nasogastric feeding may
be warranted. There is often a gross motor delay, with many children
not walking until 2-3 years of age. Apparently the motor tone
improves with age.
The problems with overeating seem to occur after the first year of
life according to Dr Lennox. He describes having to be very vigilant
with food, to the point of locking fridges and hiding pet food. Other
dietary controls in older children and adults aim at controlling
number of meals and meal sizes, plus lots of salads etc. He doesn't
address the subject of breastfeeding, but he may be more help if you
call him.
I suppose that general measures that are aimed at all hypotonic
infants would help in the early stages.
Hope this helps
Fiona


Fiona Coombes MBBS IBCLC               [log in to unmask]
Lactation Consultant, Family Physician
Perth Western Australia