Have any of you heard of Golden Hart Syndrome.?  I have a client who was 
diagnosed at the age of 7 years with this very rare condition.  Her newborn 
baby just delivered has also got all the symptoms,eg Deformity of one ear 
(right), almost looks like half an earlobe with hearing loss apparently in that 
ear. A palsy of the right side of the face, the right eye appears to be infected 
and is oozing clear fluid. There does not appear to be any other obvious 
physical symptoms.  Baby's weight was 3,500kgs at birth
Mom has had plastic surgery to her ear some years ago  but does not have 
any other obvious signs.

I was called in to assist with the breastfeeding as everyone was convinced 
this baby would not feed due to the palsy.  Contrary to everyones 
expectations this baby is doing very well at the breast but needs assistance 
when latching on the right side, although Mom is doing  well and very 
committed to breastfeeding.

I have searched the internet & archives but have come up with very little 
although I did read that there may be some heart involvement and also that 
chromosome 16 may be the gene involvement.

Please help if any one knows this syndrome or has worked with a baby with 
this.

Many thanks,

Janine Johnson
RN  RM IBCLC,
George 
South Africa

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