This story broke my heart!  I cried for this poor mom and baby trying  to 
find someone to listen.  Is it not possible for her to pick her own  doctors?  Is 
the medical system set up so she has to follow a chain to  care?  In the USA 
that is true also for certain forms of health  insurance.  I can only imagine 
her frustration and anger as no one is  listening to her, and by the time 
someone does it may be too late.  Can she  go on her own to a specialist who will 
recognize these symptoms more  readily?  I agree that breastfeeding is 
probably the only thing saving this  child and that it is vital she continue, but 
with a pregnancy her supply is  going to dwindle and then what?  At some point 
this is going to become a  drastic situation that they waited to long to 
diagnose and treat  appropriately.  She is doing everything right and the system she 
has to  work within is not working hard enough to find an answer.  If she were 
not  breastfeeding would they maybe then decide something is wrong?  That is 
the  big thing isn't it?  Because she is breastfeeding her baby everything 
must  be about her and the feeding.  What if she was not breastfeeding then would 
 they believe that something was wrong because the 'science food' was not  
working?  This is insanity. When normal is not working, something is wrong,  the 
breastfeeding is not the problem and they should be working to find out what  
is wrong not blame the poor mom for doing the one thing that is right.
 
Joy, please keep us posted if they find a solution for this child.  
 
Best,
Pam MazzellaDiBosco, IBCLC, RLC
Florida, USA

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