For coincidence, I heard for the very 1st time in my life about this syndrome from one of my client, who is a German mother moved in Italy in the last year. She has a 8-mo.s little boy and had a terrible vacuum vaginal birth, after that the baby had some difficulties and in Germany she had a diagnosis of this KISS syndrome. She went to a chiropractor and solved, she told. I think that many of us still know and happened to have clients with babies struggling in bf with some kind of problem in the field of cranoisacral-osteopatic- and so on... (The problem here in Italy is that even to go to a chiropractor is a very difficult issue!) Maybe this syndrome just put all togheter some different little pieces... Anyway, I am interested in learning more, if you have data, websites, or other in English, i'd like to read about it Hugs Martina IBCLC Rome ----- Original Message ----- From: "Rachel Myr" <[log in to unmask]> To: <[log in to unmask]> Sent: Tuesday, June 16, 2009 8:07 PM Subject: KISS and KIDD syndrome These are familiar terms i N. Europe and at least in Norway several of us who work with breastfeeding problems have run across babies who fit the description of having KISS syndrome. Personally I am less concerned with labeling something as a syndrome than with solving the breastfeeding problem, and so far manual therapy looks like the best thing going, from my very limited experience. At least one osteopath/craniosacral therapist in my town has done a study on CST and breastfeeding and her opinion is that the muscles used in suckling at the breast can help bring cranial bones into better alignment and keep them there, though she feels it is generally necessary to do CST first so the baby can suckle effectively at all. There is high resistance among pediatricians to the notion that many many babies suffer from a hitherto unknown and undetected syndrome which has not been researched by pediatricians or other physicians besides osteopaths. I think we have an uphill struggle ahead, and the most effective way I've found to work at the moment is by collaborating with my colleagues, who are mainstream pediatricians, on breastfeeding problems, showing them on a case by case basis when the problem was solved with the help of manual therapy by someone experienced with treating young infants. Since the term KISS syndrome is like a red cloth to a bull for peds here, I prefer to get them to take a look at the baby as I point out all the features of the individual case that are making breastfeeding nearly impossible. The ones I work with can readily see that these babies have something going on, and it's not something they have a name or a treatment for, so when I talk about physiotherapy they usually are just as interested as I am to see whether it helps. If the therapist (in my town I can refer to osteopaths, physical therapists, and chiropractors, some of whom hold more than one of these credentials) writes a good summary of what they did, it lets the pediatrician know that they are seriously interested in future collaboration and it shows that they have a strategy that involves more than a simple laying on of hands - even though that is all the treatment appears to be to an untrained observer. For what it's worth, most of the cases I have seen resembling KISS syndrome have not manifested themselves before 2 or 3 months have passed. When I take the history of the breastfeeding problem, it seems that feeding never went really well, but they limp along for the first few weeks, with vague symptoms that could be any number of things, before things come to a crisis with the baby refusing even to lie in mother's arms and screaming at being brought to breast, sometimes on both sides, but usually with a marked aversion to one side. In every case I have seen, there was some improvement with body work, sometimes dramatic but usually more gradual over the course of two or three treatments, until feeding starts being downright enjoyable for mother and baby alike. Even in the cases where there was little improvement, the parents were grateful for the referral. In the longer term, our lives would be easier if pediatricians (and parents!) were able to take in just how serious an intervention it is to meddle with birth, but until that happens I have to have some way to get help for the babies I am seeing here and now who seem to benefit from this kind of body work. I'm willing to compromise about what to call the problem if that's what it takes to get acknowledgment that the problem exists. FWIW I was taught in midwifery school about torticollis, and we learned that nobody knows what causes it, or even whether it starts in utero or is a response to taking a wrong turn, so to speak, in the birth canal. Oddly, pediatricians will readily acknowledge that a baby has torticollis, even without good diagnostic criteria or clear guidelines for treatment. Rachel Myr Kristiansand, Norway *********************************************** Archives: http://community.lsoft.com/archives/LACTNET.html To reach list owners: [log in to unmask] Mail all list management commands to: [log in to unmask] COMMANDS: 1. To temporarily stop your subscription write in the body of an email: set lactnet nomail 2. To start it again: set lactnet mail 3. To unsubscribe: unsubscribe lactnet 4. To get a comprehensive list of rules and directions: get lactnet welcome __________ Informazioni da ESET NOD32 Antivirus, versione del database delle firme digitali 4154 (20090615) __________ Il messaggio è stato controllato da ESET NOD32 Antivirus. www.nod32.it *********************************************** Archives: http://community.lsoft.com/archives/LACTNET.html To reach list owners: [log in to unmask] Mail all list management commands to: [log in to unmask] COMMANDS: 1. To temporarily stop your subscription write in the body of an email: set lactnet nomail 2. 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