HI COnnie!

I don't have an answer to your query but I wanted to mention that I would
like all the info you get too.
The son ( now 9 years) of my friend has factor 5 deficiency. It is
terrible. I was told that there is no real information on it because there
were only 8 people known to have it when he was born. Therefore I'd
appreciate any and all info you have.

To make this breastfeeding related, he wasn't breastfed unfortunately :(.


Renate.

At 23:01 21-5-01 -0500, you wrote:
>Dear friends,
>
>We have an interesting case in our hands.  Mother gave birth to a baby
>approximately 25 weeks gestation.  Emergency C-section due to placenta
>abruption, mom's kidneys shutting down, high blood pressure, etc.  You name
>what could go wrong......it did.  This mother is lucky to be alive!  She was
>just recently taken off of dialysis, three weeks after delivering her baby.
>
>Anyway, baby was sent downtown to Rush-Presbyterian, where they have the
>micro-premies.  Dr. Paula Meier works at that hospital.  Our NICU moms are
>on the same system as Rush-Presbyterian as far as pumpinhg and storing milk.
>
>Unbelievably, this mom pumped and brough in a nice milk supply.  She started
>bringing lots of milk in for her baby.  Baby is now stable and back in our
>NICU, doing pretty well.  Mom has now been ree-admitted and has  been tested
>for Factor 5, and is positive.  Her internist started her on Coumadin.  She
>has been told she will be on Coumadin for the rest of her life.
>
>Here's where breastfeeding is in question:  The neonatologist has informed
>the mother that he does not want the milk used from when she began on the
>Coumadin.  He wants her to pump and dump until two and a half days after
>she's been off of the Coumadin.  We provided the neonatologist with info
>from Tom Hale's book.  The neonatologist is afraid of intracranial bleeding
>if the Coumadin tainted milk is used.
>
>Baby is also being tested and may be at risk for Factor 5.
>
>We told mom to take the milk home and freeze it to use for later use instead
>of pumping and dumping.
>The question is:  Is there any remote  risk in using this milk for this
>premie.? Baby is now 29 weeks gestational age.   ......and yes I know that
>you can't assess the baby based on my limited information.
>
>We have decided that this is something we can all learn from as LCs.
>
>Has anyone else encountered this or a similiar situation?
>
>Wondering what  your thoughts are.
>
>Connie Chiavario, IBCLC
>
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>

--------------------------------------------------------------
Renate Rietveld, IBCLC
E-mail  : [log in to unmask]
Homepage: http://home.wanadoo.nl/renate.rietveld.ibclc
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