I just finished the CNN transcript about the baby who died.  This could have
very well happened to me.  Everything I had read before this talked about
breast reduction and mismanagement of breastfeeding.  But what I picked up
was the congenital adrenal disease...this could have happened to me!  My son
was born term and at the time, babies were seen at 6 weeks.  I had called
the ped several times because my son threw up (not spit up, not reflux)
every day at the same time, huge amounts. He seemed thin, every though he
was 9'4" at birth, and I didn't even have pictures taken because he seemed
like a "sad" baby.  Plus he seemed to be unhappy, too.  At 5 weeks of age,
while lying on my chest, he had a seizure.  Because my oldest had epilepsy,
the ped knew that I knew what a seizure looked like, and had me bring him
in.  He said that he saw nothing wrong with him, but sent us to the hospital
for tests.  My son was under birth weight and had the lowest sodium level
every recorded at that hospital (in Denver), and was diagnosed with
congenital hyperplasia.  The docs said he would have died that night if I
hadn't brought him in.  I fed frequently, was in communication with my
doctor, and still, we slipped thru the cracks.  Plus, friends who saw my son
later said, well I thought he looked too thin/bad/etc, but I didn't want to
worry you.  Thanks guys, I almost lost my baby/  These comments were said by
nurses! who should know better.
    I believe that it was the adrenal problem that was the main issue in the
death of this baby, with the surgery and management a great part of it too,
of course.
    I always tell my story to a mom if I am worried about her baby, so that
she knows I have her best interest at heart when I tell her why I'm
concerned about her baby.  I actually saved one baby's life that way!
    and my son is 23 years old and healthy!
    Jacie in Albuquerque, New Mexico in the great American Southwest

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