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Subject:
Subject: dystrophic epidermolysis bullosa
From:
David and Anne Andis <[log in to unmask]>
Reply To:
Lactation Information and Discussion <[log in to unmask]>
Date:
Sat, 14 Jun 1997 10:29:52 -0500
Content-Type:
text/plain
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text/plain (14 lines) 
I wanted to contribute the number of NORD, the National Organizations of
Rare Disorders.  They are a parent clearing house of all rare diseases.
They can help this mother reach other parents in the same situations.

The National Organization for Rare Disorders
PO Box 8923
New Fairfield, CT  06812
203-746-6518
1-800-999-NORD

Hopefully they can help.

Anne Andis

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