Dear Pam:

I visited Lactnet tonight and noticed your post about your granddaughter. My heart goes out to you and your family. How difficult all of this must be for all of you.

Here is the link to the full text of my article, "Congenital Disorders: Implications for Breastfeeding," which might give you some ideas: http://www.lalecheleague.org/llleaderweb/LV/LVDec99Jan00p123.html. A longer version of this article was published as "Congenital Disorders in the Nursling," Unit 5 in LLLI's Lactation Consultant Series II.

The National Organization of Rare Disorders may be a useful resource, in general: http://www.rarediseases.org/

This mother-support organization may be helpful, too: http://www.netnet.net/mums/

Also, on May 25th, I will be doing a Live (Internet) Chat for Mothering magazine on grieving breastfeeding losses (the complete loss of breastfeeding, the loss of direct breastfeeding, the loss of expected breastfeeding experiences). My website (www.lifecirclecc.com) has more information.

Hoping something here is useful,

Cynthia

--
Cynthia Good Mojab, MS clinical psychology, IBCLC, RLC, CATSM 
LifeCircle Counseling and Consulting, LLC 
Website: www.lifecirclecc.com 
Phone: 503-615-0845 
Email: [log in to unmask] 
Ammawell 
Website: http://home.comcast.net/~ammawell 
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